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Mám autistické dieťa. Cesta a výzva zároveň

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erikasadek
13. nov 2009

otvaram tuto temu kedze podobnu som nikde nenasla....

u nas to vyzera , ze asi ano. len cakam na vysledok je to ako cakanie ,ako na kata ☹

velmi sa trapim kvoli tomu uz dlho a bola by som rada , ak by s atu nasli mamicky ktore maju podobny problem...
myslim si ze by sa dalo o tom vela rozpravat a mne osobne dobre robi ak mozem o tom rozpravat a hlavne s niekym kto uz ma doma podobny problem alebo poznal niekoho...

bude to ako skupinova terapia, inak to ani nazvat neviem ale myslim ze sa tu snad niekto najde.. a budem esi mat co povedat...

myslim si ze je to tema, novodoba , ktora zacina trapit mnohe rodiny a nasu spolocnost...
nehovori s ao tom lahko , ani medzi partnermi alebo v rodine, tak uvitam , dobru diskusiu na tuto temu..

dakuejm Vam , vopred ak sa zapojite.. 🙂

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anka912
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26. aug 2011

@andreabe mne samej vychádza tak zo desať bodov 😀 a to mám plný počet v komunikácii 😀 😀 😀

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magimary
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26. aug 2011

@valika_val lenže iná osoba ho nemá ako objektívnejšie poznať, keď s ním nie je denne...
aj anka s ním už bola 2x1hodku a myslím, že ani jej hodnotenia (nech by boli akokoľvek profesionálne, čo si myslím, že sú!!!) by neodhalili jeho 24 hodinový deň...
čo potom nejaký "objektívny odborník", ktorý je s dieťaťom polhodku až hodku? 😒

a ak by tam aj boli "objektívnejšie" výsledky, tak rozhodne nie o nejakých 100bodov nižšie... 😔

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anka912
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26. aug 2011

@magimary ja som odfajkla len že má 7r.8m. a že som rodič, nič iné, od toho to vôbec nezávisí
ten dotazník je originál určený nato, aby si si mohla ohodnotiť, ako zaberá nejaká terapia, napr. dávaš magn+B6 a o dva týždne zistíš, či za zlepšil, či nie

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valika_val
•
26. aug 2011

ja som tu dnes asi za blbu, ale kde najdem tlacitko odoslat, nejaky enter alebo co???

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valika_val
•
26. aug 2011

@magimary hej, to mas pravdu... ☹

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anka912
•
26. aug 2011

@valika_val úplne posledné- enter data for scoring

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magimary
•
26. aug 2011

inak, teraz mi to prišlo aj na mail, lebo ja som si myslela, že odpoveď príde až za nejaký čas na mail...

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sisstin
•
26. aug 2011

@andreabe no já jsem si docela oddechla, páč přece jenom Tygr v něčem divnej je...třeba to jídlo 😉 ale co se týče třeba toho sociálna, tak tam fakt není ani v jedné otázce problém... 😕 co tam je popsané, tak všechno normálně dělá nebo umí....

takže asi fakt v tomto je teda v poho...ono furt přece jenom nějaké pidi podezření mi v té hlavě hlodá 😉

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valika_val
•
26. aug 2011

ahaaaaaaa, som myslela, ze sa na to neda kliknut, lebo je to svetlosivou 😅
tak vysledok:
Total Score: 60
I. Speech/Language/Communication: 22
II. Sociability: 9
III. Sensory/Cognitive Awareness: 13
IV. Health/Physical/Behavior: 16
ale asi to nie je relevantne... ci? neviem, ako beru do uvahy ten vek.

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valika_val
•
26. aug 2011

magi, skus to dat vecer vyplnit muzovi... aj ja dam.

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anka912
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26. aug 2011

@magimary Ja som to myslela tak, že napr. problémy s jedlom- jedna mama tej nevadí, že dieťa zje polievku a dve fľaše mlieka za deň, berie to ako OK-minor problém a druhá to berie ako max. problém a hneď máš dva body rozdiel. Ale samozr. by nebol rozdiel 100 bodov, tak možno 10 dokopy.

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magimary
•
26. aug 2011

@valika_val podľa mňa ten sa tam automaticky zohľadňuje,
ten program s tým jednoducho presne ráta a kalkuluje,
veď keď anka hovorila, že by jej vyšlo 10 bodov a nemá ten vek detský, tak ja si myslím,
že z hľadiska veku je to dosť presné...
píše sa tam dátum narodenia, tak asi nie len tak (teda ja som ho tam dala)

a tiež má Teo dosť 😕 😔

áno, @anka912, to chápem...ale ten rozdiel ...by fakt nepomohol...

a valika, skúsim...ak ho ukecám ... (ale on je tradaj a bude sa pýtať mňa, ale skúsim ho spracovať...)

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anka912
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26. aug 2011

@valika_val tvoj je tak malý, že žiaden výsledok nebude relevantný!!! Ale k Tadyho 126???Tomu nerozumiem

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magimary
•
26. aug 2011

@anka912 124

prosím vás, koľko ste mali vy u detí, keď ste to robili prvýkrát? 😕

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valika_val
•
26. aug 2011

magi, idem si tvoje odpovede prestudovat

tu su moje
I. Speech/Language/Communication
1. Knows own name: Somewhat true
2. Responds to `No' or `Stop': Very true
3. Can follow some commands: Very true
4. Can use one word at a time: Not true
5. Can use 2 words at a time: Not true
6. Can use 3 words at a time: Not true
7. Knows 10 or more words: Not true
8. Can use sentences with 4 or more words: Not true
9. Explains what he/she wants: Somewhat true
10. Asks meaningful questions: Not true
11. Speech tends to be meaningful/relevant: Not true
12. Often uses several successive sentences: Not true
13. Carries on fairly good conversation: Not true
14. Has normal ability to com municate for his/her age: Not true
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Total for Section I: 22
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**II. Sociability
1. Seems to be in a shell - you cannot reach him/her: Somewhat descriptive
2. Ignores other people: Very descriptive
3. Pays little or no attention when addressed: Somewhat descriptive
4. Uncooperative and resistant: Not descriptive
5. No eye contact: Somewhat descriptive
6. Prefers to be left alone: Not descriptive
7. Shows no affection: Not descriptive
8. Fails to greet parents: Somewhat descriptive
9. Avoids contact with others: Not descriptive
10. Does not imitate: Not descriptive
11. Dislikes being held/cuddled: Somewhat descriptive
12. Does not share or show: Not descriptive
13. Does not wave `bye bye': Somewhat descriptive
14. Disagreeable/not compliant: Not descriptive
15. Temper tantrums: Not descriptive
16. Lacks friends/companions: Not descriptive
17. Rarely smiles: Not descriptive
18. Insensitive to other's feelings: Somewhat descriptive
19. Indifferent to being liked: Not descriptive
20. Indifferent if parent(s) leave: Not descriptive
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Total for Section II: 9
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III. Sensory/Cognitive Awareness
1. Responds to own name: Somewhat descriptive
2. Responds to praise: Very descriptive
3. Looks at people and animals: Very descriptive
4. Looks at pictures (and T.V.): Very descriptive
5. Does drawing, coloring, art: Not descriptive
6. Plays with toys appropriately: Somewhat descriptive
7. Appropriate facial expression: Very descriptive
8. Understands stories on T.V.: Somewhat descriptive
9. Understands explanations: Somewhat descriptive
10. Aware of environment: Very descriptive
11. Aware of danger: Not descriptive
12. Shows imagination: Somewhat descriptive
13. Initiates activities: Very descriptive
14. Dresses self: Not descriptive
15. Curious, interested: Very descriptive
16. Venturesome - explores: Very descriptive
17. Tuned in - Not spacey: Somewhat descriptive
18. Looks where others are looking: Somewhat descriptive
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Total for Section III: 13
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IV. Health/Physical/Behavior
1. Bed-wetting: Serious Problem
2. Wets pants/diapers: Serious Problem
3. Soils pants/diapers: Serious Problem
4. Diarrhea: Not a Problem
5. Constipation: Not a Problem
6. Sleep problems: Not a Problem
7. Eats too much/too little: Not a Problem
8. Extremely limited diet: Not a Problem
9. Hyperactive: Minor Problem
10. Lethargic: Not a Problem
11. Hits or injures self: Not a Problem
12. Hits or injures others: Not a Problem
13. Destructive: Minor Problem
14. Sound-sensitive: Not a Problem
15. Anxious/fearful: Minor Problem
16. Unhappy/crying: Not a Problem
17. Seizures: Not a Problem
18. Obsessive speech: Not a Problem
19. Rigid routines: Minor Problem
20. Shouts or screams: Not a Problem
21. Demands sameness: Minor Problem
22. Often agitated: Minor Problem
23. Not sensitive to pain: Not a Problem
24. Hooked or fixated on certain objects/topics: Minor Problem
25. Repetitive movements: Not a Problem
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Total for Section IV: 16
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anka912
•
26. aug 2011

@magimary prepáč!!!

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andreabe
•
26. aug 2011

@sisstin chapem presne o com hovoris 😉 ale vzhladom k bodom mozes byt uuuplne spokojna 😉 este 20 dolu a vas dobehneme 😀
@magimary zaujimave bude, ked urobis ten test o polroka. S malym uz teraz zacinas inak komunikovat, ked nastupite na terapiu, prip,nejake vitaminove doplnky, tak uvidis, ako sa to zmeni.. 😉

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magimary
•
26. aug 2011

@anka912 to nič...
aj tak tie dva body nič nezavážia...

ktovie, ako by to vyšlo @lucka261177 -mu malému Samkovi, mmmch, dnes má meniny, nie?!? 😨 😉 🙂
všetko najlepšie a nechže mu len chutí!!!! 😵 😔

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anka912
•
26. aug 2011

@valika_val ja si myslím, že oblasť2-3 hovorí najviac o autizme, 1 z časti a 4 najmenej

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sisstin
•
26. aug 2011

tak máme bodů víc, ono se to pak počítá nějak jinak, když jsem to tam naházela 😅

ate: 8/26/2011 9:01:31 AM
Child's Name:
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***TOTAL AND SUBSCALE SCORES***
Total Score: 16
I. Speech/Language/Communication: 11
II. Sociability: 0
III. Sensory/Cognitive Awareness: 3
IV. Health/Physical/Behavior: 2
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I. Speech/Language/Communication
1. Knows own name: Very true
2. Responds to `No' or `Stop': Very true
3. Can follow some commands: Very true
4. Can use one word at a time: Very true
5. Can use 2 words at a time: Very true
6. Can use 3 words at a time: Very true
7. Knows 10 or more words: Very true
8. Can use sentences with 4 or more words: Not true
9. Explains what he/she wants: Somewhat true
10. Asks meaningful questions: Not true
11. Speech tends to be meaningful/relevant: Very true
12. Often uses several successive sentences: Not true
13. Carries on fairly good conversation: Not true
14. Has normal ability to com municate for his/her age: Not true
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Total for Section I: 11
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**II. Sociability
1. Seems to be in a shell - you cannot reach him/her: Not descriptive
2. Ignores other people: Not descriptive
3. Pays little or no attention when addressed: Not descriptive
4. Uncooperative and resistant: Not descriptive
5. No eye contact: Not descriptive
6. Prefers to be left alone: Not descriptive
7. Shows no affection: Not descriptive
8. Fails to greet parents: Not descriptive
9. Avoids contact with others: Not descriptive
10. Does not imitate: Not descriptive
11. Dislikes being held/cuddled: Not descriptive
12. Does not share or show: Not descriptive
13. Does not wave `bye bye': Not descriptive
14. Disagreeable/not compliant: Not descriptive
15. Temper tantrums: Not descriptive
16. Lacks friends/companions: Not descriptive
17. Rarely smiles: Not descriptive
18. Insensitive to other's feelings: Not descriptive
19. Indifferent to being liked: Not descriptive
20. Indifferent if parent(s) leave: Not descriptive
-----------
Total for Section II: 0
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III. Sensory/Cognitive Awareness
1. Responds to own name: Very descriptive
2. Responds to praise: Very descriptive
3. Looks at people and animals: Very descriptive
4. Looks at pictures (and T.V.): Very descriptive
5. Does drawing, coloring, art: Not descriptive
6. Plays with toys appropriately: Very descriptive
7. Appropriate facial expression: Very descriptive
8. Understands stories on T.V.: Very descriptive
9. Understands explanations: Very descriptive
10. Aware of environment: Very descriptive
11. Aware of danger: Very descriptive
12. Shows imagination: Very descriptive
13. Initiates activities: Very descriptive
14. Dresses self: Somewhat descriptive
15. Curious, interested: Very descriptive
16. Venturesome - explores: Very descriptive
17. Tuned in - Not spacey: Very descriptive
18. Looks where others are looking: Very descriptive
------------
Total for Section III: 3
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IV. Health/Physical/Behavior
1. Bed-wetting: Not a Problem
2. Wets pants/diapers: Not a Problem
3. Soils pants/diapers: Not a Problem
4. Diarrhea: Not a Problem
5. Constipation: Not a Problem
6. Sleep problems: Not a Problem
7. Eats too much/too little: Moderate Problem
8. Extremely limited diet: Not a Problem
9. Hyperactive: Not a Problem
10. Lethargic: Not a Problem
11. Hits or injures self: Not a Problem
12. Hits or injures others: Not a Problem
13. Destructive: Not a Problem
14. Sound-sensitive: Not a Problem
15. Anxious/fearful: Not a Problem
16. Unhappy/crying: Not a Problem
17. Seizures: Not a Problem
18. Obsessive speech: Not a Problem
19. Rigid routines: Not a Problem
20. Shouts or screams: Not a Problem
21. Demands sameness: Not a Problem
22. Often agitated: Not a Problem
23. Not sensitive to pain: Not a Problem
24. Hooked or fixated on certain objects/topics: Not a Problem
25. Repetitive movements: Not a Problem
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Total for Section IV: 2
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anka912
•
26. aug 2011

@sisstin presne, body sa rácu inak a zohľadňuje vek.

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magimary
•
26. aug 2011

@andreabe no, práve v to dúfam, lebo toto ma fakt zaskočilo... 😔
som bola taká rada, že aké veľké číslo, že jak dobre..., keď som to zbadala...

preto sa ale pýtam, na akých číslach ste začínali vy?
a ešte: myslíte, že toto "vyšetrenie" berú do úvahy aj odborníci (tu u nás)?
teda, či tie výsledky považujú za relevantné? 😕

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sisstin
•
26. aug 2011

@anka912 jj, no nejlíp dopadnul v tom sociálnu...nejhůř v té řeči, což je teda logický 😝

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anka912
•
26. aug 2011

@magimary ja som ten papier vytlačila a dala mojej psych. veľmi ju to zaujalo.
Ja som to robila pred pár mesiacmi a mal +- to isté
V takom vyššom veku už veľa nenapravíš, najviac v prvých povedzme 5 rokoch

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valika_val
•
26. aug 2011

je niekde nejaka tabulka, kde sa to da porovnat, kde je vysvetlenie, ake su hranice a tak?

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magimary
•
26. aug 2011

@anka912 a skôr nie? myslím teda či si mu to nerobila pred pár rokmi a tak? 😕

no, to sa pýtam, valika, už hodnú chvíľu aj ja...
ale zatiaľ čakám na odpoveď...

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anka912
•
26. aug 2011

@magimary nie
skús pohľadať na stránke. To čo som vravela ja, som si tak pre seba logicky odvodila a z iného podobného testu, čo som o ňom počula.
Veriť mi predsa nemušíš, ale predstavu to dáva

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valika_val
•
26. aug 2011

tak potom odkial viete tie hodnotenia? a ze do 30 je to ok?

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magimary
•
26. aug 2011

@anka912 aha 😒

valika, to anka vie...
ževraj je to tam aj v tom teste...
ale ja som si to nevšimla a určite tam k tomu priamo v texte dotazníka nie sú aj objasnenia...
takže, neviem 😕

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andreabe
•
26. aug 2011

@magimary ked mal maly
2r.9m = 51 bodov
3r.4 mes=36 bodov
3r. 10 mes=27 bodov